Take part in eating disorders research

Take part in eating disorders research

On this page your will find requests from people engaged in research about eating disorders, who are looking for individuals to take part in their projects.

Please be aware that these research projects are independent and not connected to SWEDA. The inclusion of a research project on these pages does not represent an endorsement of the project by SWEDA and SWEDA in no way accepts responsibility for any aspect of the project or the data collected.

Be aware that in participating in a project you do so at your own risk and that it would be advisable to be familiar with the guidelines and policies under which a particular research project runs.

If you have any research that you would like us to link to, and are based in a UK college or university, please do get in touch.

Open Research Projects

'Are you a young person, or a parent/carer of a young person, with lived experience of an eating disorder? We would love to hear your views on guided self-help treatments!'

The demand for eating disorder services among children and young people has increased substantially over recent years. One way of meeting a large demand for psychological support is through the use of guided self-help interventions.
We want to develop a brief, guided self-help intervention to support children and young people with eating disorders, and their families. We would like to better understand young people and their parents’ views on various aspects of guided self-help interventions to ensure that we develop a treatment programme that families want and need. 

Who can take part in the research project?

a) Children and young people (aged 11-19 years) with a current, or previous, eating disorder diagnosis

b) Living in the UK


c) Parents/carers of young people (aged up to 19 years) with a current, or previous, eating disorder diagnosis (including ARFID)

a) Living in the UK

What does the study involve?

The study involves filling in a short screening questionnaire to check whether you are eligible to take part in a focus group. This questionnaire takes approximately 5-10 minutes to complete.

If you are eligible to take part, you will then be invited to take part in a focus group. In the focus group, you will be asked to talk about any experience you may have had using self-help, who you think the self-help should be for, what you think the self-help should include and who should be involved in delivering the self-help. Participants will not be specifically asked to talk about their own lived experience of eating disorders.

The focus group will take place online and will last approximately 1.5 hours. You will receive a £40 Amazon or Love2Shop voucher for taking part in a focus group.

How can someone take part?

If you would like to take part, please click here. The lead researcher, Emily Davey (PhD Student) can be contacted at spicestudy@ucl.ac.uk.

Title: Short Psychological Intervention for Children and adolescents with Eating disorders (SPICE) study

PI: Professor Roz Shafran

UCL REC Reference number: 22129/001

Anorexia Nervosa (AN) is a complex illness and we need to know more about what helps and hinders people’s recovery. This research aims to explore how people experience a strategy called “externalisation” which is sometimes used in psychological therapy for AN.

Who can take part?

  • Individuals who are aged 16 and above, UK residents, and have a past or current diagnosis of Anorexia
  • Have completed at least one or more NICE recommended therapies for anorexia (AN) and may or may not have reached a point of recovery from an eating disorder
  • Have had experience externalising the eating disorder. This means that you talked about anorexia as a separate identity to yourself, or perhaps you were encouraged to but you didn’t feel this approach was helpful in your recovery
  • You received treatment for AN no longer than 5 years ago

Please click here for more details on the study and how to take part. 

If you are interested in participating or if you have any further questions and would like to know more about this research, please email Sophie Cripps via sophie.cripps.20@ucl.ac.uk at University College London.

It is hoped that this research will help to refine our understanding of how certain eating behaviours may develop and/or be maintained, which may, in turn, inform more effective interventions.

Who can take part?

  • Anyone who is 18 years old or over
  • Anyone who is fluent in English

What does this study involve?

Completion of online questionnaires, which can be accessed through this link: https://nclpsych.eu.qualtrics.com/jfe/form/SV_extrPD2peBlSKdU 

The questionnaires may take around 15 to 20 minutes to complete, and not more than 30 minutes.

If you are interested in participating or if you have any further questions and would like to know more about this research, please email Stuart Rae via S.G.Rae2@newcastle.ac.uk at Newcastle University.

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